She is 9 years old. Her hair is the color of wildflower honey. She has a cherub face. Her name is Luxe, which is Latin for light. Her mother chose this name as soon as she knew she was pregnant.
Luxe has aplastic anemia.
Aplastic anemia can be serious. It means your bone marrow doesn’t make enough red blood cells. One of the symptoms is easy bruising. Another symptom is that infections last way too long.
If you have aplastic anemia, there are medicines that might help you. But your main treatment option is a bone marrow transplant. Which is a frightening procedure.
Especially if you are a 9-year-old like Luxe.
A lot of people don’t know exactly what a bone marrow transplant involves. People, for example, like me.
So I called a Methodist University Hospital doctor in Memphis to explain the procedure. The doctor was glad to talk to me on his lunch break.
“Bone marrow is life,” he said. “Marrow comes in two colors. Red and yellow. It fills the cavities of your bones, and it has a
big job. Red marrow makes your blood. So it’s pretty important stuff.”
Bone marrow is spongy, he tells me, like jelly. Just imagine spreading jam on toast. That’s the consistency. And chances are, if you need a marrow transplant, you need it yesterday.
“A marrow transplant is a huge undertaking. Especially for kids. There’s a conditioning period of about ten days.
“The immune system has to be totally suppressed so the body doesn’t reject new marrow cells. This usually involves intensive chemo and radiation.”
At minimum, you’re looking at nausea, vomiting, diarrhea, hair loss, organ damage, and a host of other serious side effects I won’t mention.
Things no child deserves to suffer.
“Some people recover in three months. Some people take twelve months or longer. Everyone’s different. But it’s a big deal, and it’s not easy.
“There’s a lot…