DEAR SEAN:
I have tickets to see you at The Ritz Theater in Talladega in September. I was so excited to see you were coming that I secured five tickets. I’ve since broken the news to my husband who is now obligated to attend instead of fishing. I am also bringing my sister, and her boyfriend.
That leaves one ticket.
That fifth ticket is the one I want to ask you about.
The fifth ticket is for my son. Our one and only son is a beautiful, brutally honest, extremely complex, soon-to-be 13-year-old. His name is Owen.
I had Owen when I was 28. Little did we know what the next 13 years held. I first knew something wasn’t right when he had feeding issues in the hospital. His doctors wrote us off as naive first-time parents.
We weren’t. We had no idea, but at some point Owen had a hemorrhagic stroke. His stroke caused left unilateral obstructive hydrocephalus, which is spinal fluid inside the brain. I had to force feed him—holding
his jaw shut so he’d latch onto bottles.
For four weeks I took him to the pediatrician to voice my concerns, only to be brushed off as an anxious mother.
I finally broke down and did what doctors hate, I consulted with Doctor Google. I told the doctors, “It’s hydrocephalus.” The doctors thought I was crazy. Until they measured his head, which had grown two inches in four weeks. His brain was under so much pressure that the CT scan looked like a big black hole.
Owen’s first brain surgery was at 4 weeks old. Suddenly, I was transformed into not just a mom but a mom to a medically complex child.
His second brain surgery was at 5 months. Then came physical, occupational and speech therapies. Owen has right sided hemiplegic cerebral palsy. He can hardly use the right side of his body. He also has central…